What distinguishes associations fighting against AIDS in other patient groups? The 80 in France were marked by the commitment of several groups of patients in the process of production of medical and scientific knowledge. This is the case of the French Association against Muscular Dystrophy control and associations fighting against AIDS… but in ways very different response. While the AFM is committed very early in the process of knowledge production in particular playing a key role in mapping the human genome (with the creation of a technological infrastructure, Genethon), associations fighting against AIDS occurred further downstream on clinical research, where the question arises specifically from the condition of patients in the testing of new treatments. While the AFM has given its commitment to research a monolithic image, associations fighting against AIDS were instead characterized by the diversity of their commitment to defending different ways of thinking about issues and how to fight against the disease..

This is the case, for example, the Aides, founded in 1984. Instead, the associations created at the turn of the 1990s, were positioned directly as associations of patients or homosexuals affected by the epidemic. Act Up Paris is the best known figure of this second generation of associations, a leading U.S. largely its slogans, its modes of organization, its relationship to the public arena. In terms of research and care, if all the associations wanted our back on inactive patient’s posture and destitute who delegates to doctors and researchers all initiatives in health care and research, yet they have developed relationships with highly contrasting the medical and industrial. However, in the early 1990s, a group inter-associative (1) was born in France, aiming to join forces in research and evaluation of new molecules.

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